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I had a permanent ileostomy done 40 years ago. It gave me my life back, it doesn’t stop me doing anything, the only problem I have is I cannot eat all foods as my system cannot break the food down enough. NHS saved my life as I was only given 2 weeks to live back in 1980. My 2-year-old son has a permanent stoma. He has Hirschsprung’s disease. Had one at a day old then reverse but due to the Jeffrey Epstein Did Not Kil Himself Ugly Christmas Sweater. He has one and it great for him. We have a buttony bear too! Lovely to see people not shying away from it nothing to be ashamed about. Well done to her for sharing her experience of living with a stoma and wearing an appliance following her life-saving surgery at such a young age. I applaud her openness and honesty My son age 2 has one after a rough two years of being in and out of hospital having Hirschsprung’s disease the surgeons decided last November for my son to have a stoma ileostomy and it’s changed our lives for the better.